Health Privacy: The Way We Live Now (Gellman)

A colleague called last week to discuss medical privacy. It was a personal matter. He recently had a medical procedure that he did not describe. He doesn't want me or anyone to know anything about his diagnosis or treatment. I didn't ask for details. For purpose of this article, I will identify my friend as Fred (not his real name).

Fred was contacted by a researcher who got his name from his physician. Fred was surprised at the call because he didn't give permission for his information to be disclosed to any researcher. It wasn't clear whether the researcher knew anything about Fred's condition. The study was designed to compare people who did and did not have the same condition so the physician may have only said that Fred qualified for the study. Fred couldn't ask more without disclosing the information that he was trying to keep secret.

Pharmacies Profiting At Your Expense: Your Help Is Requested

The Privacy Rights Clearinghouse (PRC) has been in the forefront in asserting that pharmacies -- and their marketing partners, the big pharmaceutical companies -- act improperly when using the medical information in customer prescriptions to mail letters or call customers in order to sell more drugs.

If this happened to you or someone in your family, please let us know.  It could be very helpful to the outcome of the lawsuit.

Survey Finds Most Online Pharmacies Do Not Give HIPAA Privacy Notices

Readability consultant Mark Hochhauser, Ph.D., in cooperation with the Privacy Rights Clearinghouse, conducted a survey of 50 online pharmacy web sites from mid-April through July 9, 2004. Of the 50, a scant 11 sites (22%) included a HIPAA privacy notice as required by the Department of Health and Human Services (HHS) under the federal medical privacy rule.

Study Shows Most Online Pharmacies Lack HIPAA Privacy Notice

The Privacy Rights Clearinghouse (PRC)1, along with readability expert Mark Hochhauser, Ph.D., is writing to call your attention to a recent survey of online pharmacies, and, in particular, the failure of most sites to post a HIPAA Privacy Notice.

In conducting this survey, Dr. Hochhauser visited 50 online pharmacy web sites. Of the 50, only 11 sites (22%) included a HIPAA Privacy Notice. The 11 sites that had a HIPAA privacy notice also posted a web site privacy policy.

Compliance vs. Communication: Readability of HIPAA Notices (Hochhauser)

In April 2003, patients in the US began receiving Health Insurance Portability and Accountability Act (HIPAA) privacy notices from their doctors, hospitals, clinics, pharmacies, and other "covered entities" that use their personal health information. As part of the HIPAA regulatory guidelines, privacy notices were to be written in "plain language." They are not.

Sample Letter to Request Medical Records

Sample letter: request medical records as allowed by HIPAA.





[Your name]
[Your address]

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