Comments to California Department of Insurance Concerning Privacy of Personal Financial and Medical Record Information

We are pleased to see that the proposed regulations, as revised, include a number of changes that will benefit individual privacy interests. We commend the staff of the Department for efforts to balance multiple interests and their willingness to consider our concerns about loss of personal privacy.

Medical Records Privacy: Fears and Expectations of Patients

The title of this talk is "Medical Records Privacy: Fears and Expectations of Patients". So you can get an understanding of my point of view, I want to start out by talking about our project, the Privacy Rights Clearinghouse, and then make several points about the topic.

A Consumer's Complaint Regarding Rite Aid Pharmacy

I feel that Rite Aid is using my family's private medical information -- our prescription records -- to aggressively market prescription medications on behalf of themselves and pharmaceutical manufacturers. I find this to be an egregious invasion of my privacy and am concerned that Rite Aid may be violating laws in California regarding my medical records privacy. At the very least, I consider this to be unprofessional conduct.

Ten Privacy Principals for Health Care

Health-related information that we share with doctors and others is among the most intimate and sensitive of all personal information. In addition to information about physical health, these records may include information about family relationships, sexual behavior, substance abuse, and private thoughts and feelings related to mental health.

Yet, as privacy advocate Evan Hendricks put it, video rental records in this country are afforded more privacy protection under law than are medical records.

PRC Comments on Proposed HHS - Medical Records Privacy Rule

Even though the proposed rule lays the foundation for the implementation of fair information principles, it takes several steps backward and gravely endangers patient privacy in a number of areas, explained below. Because of the significant shortcomings of the proposed rule, in addition to the relatively limited opportunity for individuals to have been apprised of and comment on the rule, the Privacy Rights Clearinghouse recommends that the proposed rule be withdrawn and redrafted.

For a Complete Medical History, Compile Your Own Health Records but be Cautious about Storing Them Online

If you don't already keep a personal health record, now is the best time to start. Do not rely on your ability to go back in time to collate a complete medical file. The longer you wait, the more difficulty you may have in obtaining older health records.

Groups Oppose Data Mining of Health Information by Financial Institutions

Today, the Health Privacy Project (HPP), the Electronic Privacy Information Center (EPIC), and 28 other groups, including the Privacy Rights Clearinghouse, sent a letter to U.S. Health and Human Services Secretary Tommy Thompson, opposing any changes to the new medical privacy regulation that would give a green light to banks and other financial institutions to access sensitive, personal medical information. The organizations include health care advocacy, labor, consumer, disability rights, and health care provider groups.

What Is HealthVault? Things to Think About Before You Participate

HealthVault is Microsoft's new service for storing, managing, and accessing a patient's medical information.  It operates as an online encrypted service.  The service offers a voluntary opportunity for medical records to be collected by aggregating information from various sources including health-care providers, insurance companies, and compatible medical devices (such as blood pressure monitoring devices).

Health Privacy: The Way We Live Now (Gellman)

A colleague called last week to discuss medical privacy. It was a personal matter. He recently had a medical procedure that he did not describe. He doesn't want me or anyone to know anything about his diagnosis or treatment. I didn't ask for details. For purpose of this article, I will identify my friend as Fred (not his real name).

Fred was contacted by a researcher who got his name from his physician. Fred was surprised at the call because he didn't give permission for his information to be disclosed to any researcher. It wasn't clear whether the researcher knew anything about Fred's condition. The study was designed to compare people who did and did not have the same condition so the physician may have only said that Fred qualified for the study. Fred couldn't ask more without disclosing the information that he was trying to keep secret.

Online Personal Health Records: Are They Healthy for Your Privacy?

A personal health record (PHR) is a tool for collecting, tracking, and sharing information about your health.  Because medical records are among the most sensitive type of personal information, we at the Privacy Rights Clearinghouse have some concerns about PHRs. PHRs may not necessarily be private and may not be secure, despite what the hosting site tells you.


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